Patient-Reported indicators Survey (PaRIS) for
Patients with Chronic Conditions
provincial principal investigators
Marie-Eve Poitras,
Magaly Brodeur,
Sylvie Lambert, Diana Zidarov, Regina Vesca, Jeannie Haggerty, Maude Laberge, Nadia Sourial, Sara Ahmed
Funding
$ 28,750
Réseau-1 Québec
$ 10,000
Fondation de ma vie
study setting
18 participating countries
(including Canada)
In addition to this, you need to know more about it.
25 Canadian medical clinics (pilot project)
themes
Quality of care, patient experience, PREMs, PROMS
Environmental Scan: The use of patient-reported experience and outcomes (PREMs and PROMs)
at the organisms of professionals and of patients
Découvrez la définition des PROMs et des PREMs et ce qui les caractérise!
Contenu réalisé pour l’Unité de soutien SSA Québec.
Why?
The relevance of data on the experience of care and the perception of the state of health (PREMs and PROMs) of patients is indisputable. This data is measurable and should be integrated into the learning health system to inform decisions.
Several research teams and organizations are already interested in the integration of PREMs/PROMs in clinical practice and by the various institutional levels, but the way in which they will really be integrated by professionals and patients remains unknown. How is the integration of PROMs/PREMs in their future strategic development planned and how will training in the integration of PROMs/PREMs be promoted? What support will be offered to patients in order to adopt targeted behaviors in their self-management based on their PROMs/PREMs?
As these questions remain unanswered, our project, by considering the current state of the PROMs/PREMs situation by the organizations, will make it possible to consider their perspectives in future PROMs/PREMs integration initiatives and thus support the learning health system. .
What are our goals?
1) Describe the current state of integration of PROMs and PREMs by organizations governing the practices of Quebec health and social services professionals
2) Describe how patient organizations, in the Quebec context, want to use PROMs and PREMs to promote decision-making and self-management of their health condition._cc781905-5cde-3194-bb3b -136bad5cf58d_
How did we proceed?
An environmental scan (practice mapping study) was carried out in order to know the current state of knowledge and use of measures of health status and experience of care self-reported by patients. (PREMs and PROMs) in professional organizations as well as in organizations representing patients in Quebec.
The use of PROMs and
PREMs to optimize routine care are unknown to most professional organizations
and organizations
of patients.
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What results did we get?
The ultimate goal of this project is to contribute to the establishment of a learning health system that considers the perspective of organizations representing professionals and patients through a better understanding of the current state and thought patterns of the two main actors. of the Quebec health system. We also aim to create a bridge of partnership with organizations representing professionals and patients supporting the development of professional practices or patient behaviors, with regard to the integration PREMs/ PROMs from a healthy and optimal change management perspective.
New environmental scan report
on PREMs and PROMs
In the fall of 2021, theSystem Support Unit
learner health (SSA) Quebec entrusted our team with carrying out this environmental scan (study to identify practices).
In the fall of 2021, the Learning Health System Support Unit (SSA) in Quebec mandated our team to carry out this environmental scan (practice identification study).
Here are 2 of our findings:
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The use of PROMs and PREMs to optimize routine care is unknown to most professional and patient organizations.
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The integration of PREMs through validated questionnaires is a practice completely absent within the participating professional organizations.
Nouvelle boîte à outils sur les PREMs et les PROMs :
les indicateurs de l’état de santé et de l’expérience rapportés par les patientes et patients
L'équipe a réalisé une boîte à outils, mandat octroyé par l'Unité de Soutien SSA, afin d'éclaircir le concept des indicateurs autorapportés de l'expérience de soins (PREMs) et de l'état de santé (PROMs) des patients et leur rôle potentiel dans l'amélioration du système de santé. Bien que plusieurs personnes déclarent avoir déjà intégré le concept dans leur pratique, il demeure méconnu et utilisé de façon sous-optimale. La boîte à outils contient des définitions, des exemples concrets d'utilisation, une liste non-exhaustive de différentes échelles de mesures validées ainsi que des recommandations pour leur application. Elle s'adresse aux équipes cliniques, patient(e)s, gestionnaires et équipes de recherche.
Contenu :
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PROMs, PREMs ou pas?
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Les PROMs et les PREMs : pourquoi sont-ils une clé dans l’amélioration des soins et services de la santé?
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Barrières possibles à l’intégration des PROMs et des PREMs et les moyens pour les cliniciens de les lever
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Documentation et exemples de ressources
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Recommandations
Pour télécharger la boîte à outils
